Advocating for and connecting those new to their pain journey and all the veterans of pain who have been on their journey for sometime. Testing new products and existing products for the caregiver and their loved one. Offering a safe place to tell your story with no judgement, because we've been there.
My name is Richard Kreis and I have been in chronic pain for 23-1/2 years and in that time I have meet in person and online many people such as myself who also suffer from one major illness or another and who have given me strength, courage, support and who were also understanding. September is National Pain Awareness Month and for this entire month starting with myself, I would like to ask for 28 volunteers to complete the following 25 questions pertaining to yourself and your pain so that I may post one a day throughout September. I am hoping that someone new to our world of pain will read these and gain some idea of different things to try to get some relief, questions to ask their doctor that maybe you didn’t know about until years into your journey. This is my way of giving back to all of those people, no family members that helped me through my journey.
If you are willing to help, please complete the questionnaire using only your first name and then return it to me at either of the emails listed at the bottom of this email, I would greatly appreciate it. Also know that your email will only be used to let you know when in September your story will be posted. I have two people so far so I am hoping to get the other 28 as soon as possible so I can start getting them entered onto my site. Please feel free to forward this to anyone you know that you think may be interested in helping out.
I will gift everyone that participates a free copy of my ebook, “A Journal of Care.” Which was written and designed around keeping your or your loved ones, medical information (medications, allergies, surgeries, daily vitals, expenses and more) all in one location. If you want you can also purchase a paperback copy (6″x9″) which can be carried around in a purse, backpack to all your appointments, scans, lab work ups, etc.
Thank you in advance for taking the time to read this post and a large thank you if you decide to help give back.
Please return the questionnaire to either of the following emails:
Describe your typical day. How is it impacted when your pain is mild? Moderate? Severe?
What do you do to manage your pain (e.g. medications, complementary therapies, etc.)?
How did you figure out what approaches you needed to take to get your pain under control?
Is your pain management adequate? Can it be improved? If so, how?
Has your attitude changed regarding pain as a result of your experience with chronic pain? how?
In your opinion, what is holding back your pain from improving or becoming stable? How do we break through those doors?
What does your healthcare provider do to help you with your chronic pain? What do they do that’s holding you back?
How has chronic pain impacted your family life? Your social life? Your work life?
Does the experience of living with chronic pain carry personal meaning or significance for you? Have you discussed this significance with your family? Your health providers?
What are your feelings when it comes to the thinking that the governments emphasis on opioids and the addictive qualities has taken away from the ability to manage patients pain and the inappropriate use which leads to addiction? Which in turn is actually hurting pain sufferers.
There is a stereotype out there that all those in “Pain” or on “opioids” are nothing more than addicts. Or, it’s all just in our heads? When you hear someone say one of these or something else similar, what’s your first thought?
Where do you go? Who do you talk to? What sites do you go on, when you have just had to much?
Do you think your family, spouse or friends truly understand what and how your chronic pain is affecting you both physically and mentally?
How much is, too much?
What type of treatments have you tried to rid you of your pain? Which works best?
Have you found anyone or anything that actually helps with your pain relief?
What’s treatments are in your pain relief toolbox? (massage, medication, ice/heat, physical therapy)?
What is your best piece of advice on how to best communicate when you’re in extreme pain?
What is the best piece of advice you can give someone new to chronic pain?
How do you stay in a good place with all of the physical issues you go through in a day?
How do you stay in a good place with all of the mental issues that go along with controlling chronic pain?
How much of your day do you devote to your pain and trying to keep it in check?
Do you tell people near you when you need help or when you’re in so much pain you need a break, at home? At work?
Richard Kreis has always been very active professionally, individually and with his family. Richard is the proud father of three wonderful kids and husband to a wonderful and supportive wife. Richard is the owner of iCare Consulting where he helps new and veteran caregivers with multi patients, organization of home, office and car, travel, setting up respite needs, filing paperwork and other topics as needed. He is also involved with iCareRadio.net where he takes to the airwaves via blogtalkradio.com, his topics include, caregiving, pain, medications, government issues, travel, and more.
Richard is a part-time caregiver to his mother who deals with heart issues and also helps care for Robert his brother-in-law who has dealt with epilepsy his entire life and now lives with Richard and his wife, Trish. Richard talks about how he deals with everything on his blog at iCareTalk.net and pickyourpain.org. He can also be followed on Twitter (@kreisr1) as well as on Facebook and LinkedIn.