Advocating for and connecting those new to their pain journey and all the veterans of pain who have been on their journey for sometime. Testing new products and existing products for the caregiver and their loved ones. Offering a safe place to tell your story with no judgement, because I've been there.
This is a listing of resources relevant to patients in pain. Note: IASP does not offer patient referrals, and links should not be construed as endorsement. IASP is not responsible for information contained on 3rd-party sites.
American Chronic Pain Association
The mission of the ACPA is to facilitate peer support and education for individuals with chronic pain and their families so that these individuals may live more fully in spite of their pain, and to raise awareness among the health care community, policy makers, and the public at large about issues of living with chronic pain. http://www.theacpa.org
Canadian Pain Coalition
The Canadian Pain Coalition is a partnership of pain consumer groups, health professionals who care for people in pain, and scientists studying better ways of treating pain. http://www.canadianpaincoalition.ca/
Pain Connection-Chronic Pain Outreach Center Pain Connection-Chronic Pain Outreach Center, Inc. is a not-for-profit human service agency whose mission is to empower people with chronic pain to improve their quality of life, decrease their sense of isolation and take a more active role in their treatment. http://www.painconnection.org/
Patient Advocate Foundation
The Patient Advocate Foundation aims to provide effective mediation and arbitration services to patients to remove obstacles to healthcare including medical debt crisis, insurance access issues and employment issues for patients with chronic, debilitating and life-threatening illnesses. http://www.patientadvocate.org
Paineurope contains articles around all aspects of pain and includes research updates, case studies, Q&A-type articles, guideline reviews, clinical practice, and country reviews. Four pieces of content are added each month to provide a valuable and up-to-date resource for health-care professionals. www.paineurope.com
Pain Maps is a resource center dedicated to neuroplastic approaches to healing pain and neurological dysfunction. In support of self education and initiative, it offers material, sources and ideas that enable noninvasive, drug-free options to pain reduction while exploring new dimensions in the narrative of neuroscience. Also be sure to read “What It’s Like to Live with Off-the-Charts Chronic Pain.” http://www.painmaps.com/
The Pain Toolkit is a simple information booklet that could provide you with some handy tips and skills to support you along the way to managing your pain. http://www.paintoolkit.org/
Personalized Activated Care & Training Personalized Activated Care Training (PACT) can help patients achieve long-term healing of their pain condition before it becomes chronic and causes personal suffering, life interference, addiction, and disability. Personal tool kits for preventing chronic pain and addiction are available atwww.preventingchronicpain.org.
Secret World of Pain (Video Documentary) Horizon reveals the latest research into pain and the breakthroughs that have been made, through studies on everyone from a woman in London who has felt no pain in her entire life, to a man in the US who cut off his own arm to survive, after it became lodged in a furnace. Geneticist Dr. John Woods travels the world in search of people who feel pain in strange ways or don’t feel pain at all and believes that the secret of pain lies in our DNA. http://topdocumentaryfilms.com/secret-world-pain/
SYMPTOMAis a search engine for diseases. Just enter symptoms and receive a list of matching causes – sorted by the probability for the specific case. The articles that you can find under the letters of the alphabet on the bottom of the website give an overview on the current state of research and provide up to date information. The information is freely accessible. www.symptoma.com