Robert’s Sister.com, Epilepsy Awareness Month: Preview

Hello Everyone,

     This post is a bit different from normal.  As you know, my brother in-law Robert has had epilepsy since birth and has always said that he’s here to campaign to let everyone he meets know something about this epilepsy.  My wife, Trish has made it her drive in life to help him reach his goal by produce a documentary about Robert and epilepsy to hopefully give guidance to other parents, adults and kids with stories, tips, site to look at for possible aid and on how to deal with not only epilepsy but those around you when a seizure occurs and clear up any false knowledge people may have about it.  Her website address is RobertsSister.com.  With that said, November happens to be, “Epilepsy Awareness Month” and Trish has decided that this is the perfect time to start her video campaign.  Below is a post she recently put up on her site which I would like to share with you;


Robert’s Sister, Epilepsy Awareness Month: Preview

RobertsSister.com

“I have something very special planned for Epilepsy Awareness Month this year and I hope you are as excited as I am!
For years I have had the dream of creating a Reality Show about caregiving as well as making a Documentary about caregiving and Robert.  Sure, the Reality Show about caregiving won’t be as salacious as the Kardashians or as over-the-top as any of the Housewives shows (or so I’ve heard) but it would be real.
All I needed was a camera.
As a huge surprise this year for our anniversary, Richard bought me a camera! It isn’t a professional, filmmaker camera but it is going to do the trick to get me started.  I consider it my “training wheels” camera and I have been reading the instructions and playing around with it and filming everything in sight.
The odd thing about my dream of creating a Reality Show or Documentary is I have never made a film in my life.  I created plays when I was a kid and I was an extra in a few television shows and movies when I was in my twenties but actually making a film? It’s been a dream of mine but I have no idea why and it just won’t go away.
I don’t question my gut so I am going to do a warm-up by using the camera during Epilepsy Awareness Month.  Throughout November, Robert will tell us stories about how Epilepsy has impacted his life and will tell us a little bit about his daily routines. Richard will talk about being a co-caregiver and how having his brother-in-law with us has impacted his life. I’ll share about my day as well but I prefer the “behind the scenes” camera time.
Luckily, Robert is a ham so I’ll be lucky if I can get him to stop talking!
All of us will answer any and all questions about Epilepsy and caregiving so please use the comment section below to leave your questions or what you’d like Robert (or me and Richard) to talk about.
While I don’t have a person holding a huge microphone or a director’s chair with my name on it, I do have a camera and Robert and a lot of stories. I have also been practicing my “Quiet on the set!” and “Rolling!” directives.
(Somehow, the dogs don’t quite understand what that means yet . . .)
I hope you enjoy the series in November. Please share and help us spread Epilepsy Awareness & Education! “

Feel free to submit as many questions as you would like.  Young and only alike, we will do our best to answer them as through as possible.  Your questions may not be answered all at once or on the same day, but we will do our best to answer them as quickly as possible.  Questions can be forwarded to us by posting to either webpage which I will supply again at the end of this post.  I would like to thank you all in advance for reading this post and thank you again to those who do ask questions, the more the merrier.  Have a great month and a Safe and Scary Halloween. 

Web Sites:

          http://www.RobertsSister.com

          http://www.PickYourPain.org

Location of original RobertsSister.com post:

          https://us-mg205.mail.yahoo.com/neo/launch?.partner=sbc&.rand=0tjnh496fmkeo#mail 

 

Authors Bio:
Trish Hughes Kreis writes about caring and advocating for her brother, Robert. She is helping Robert, who lives with intractable epilepsy, fulfill his expressed life purpose of spreading awareness and education about epilepsy. Trish is also on a no less important mission of keeping a steady supply of Jeopardy and (his new favorite) Family Feud recorded for him and figuring out how he beats her at so many card games.  Trish also co-cares for her husband who has long term chronic low back pain. Trish Staring at the Pacific in Santa Cruz, 082114





Authors Bio:
Richard is a trifecta caregiver, along with his wife he cares for himself, with Chronic Back Pain which he’s had for 21 years.  He cares for his brother in-law, Robert who lives with him and who has dealt with Epilepsy his entire life.  He also advocates for his mother who has various cardiac related issues, severe hearing loss and other medical issues.  You can read about his experiences with chronic pain and how he deals with his mothers and brother in-law’s issues on PickYourPain.org or at Caregiving.com.  He is also involved in several of Caregiving.com’s support groups and chat rooms, he is co-host of an internet based radio show 
about caregiving. Richard is also a patient adviser, board member for Intake.me which is working to improve the intake process at medical facilities.  Richard has three adult children who despite them having to deal with his medical issues, he says, “They have turned out better than I’d hoped for."Richard with ICare Shirt I, 06242014