Communication is Key

I can not stress this enough, “COMMUNICATION is KEY.”


For any pain, medical, disability or really any type of relationship to work there must be, communication.  If two people or even a caregiving team do not communicate the consequences can be major, medication changes go without notice, feedings, seizures, changes in behavior and many other issues can arise and cause medical issues to worsen.  Recently a change was made to my brother in law’s (BIL) medical status and he was placed on oxygen, “only when under stress or is working hard” which for him is walking to the car.  The point is at every dinner we discuss the issues of the day, doctors appointments, program issues if any for BIL, my mother who has heart issues as well as myself which I am dealing with the chronic low back pain, so as you can see communication is imperative between myself and my amazing wife, Trish.  As I started to say, this is done each evening as it gives us a chance to catch up as to whats happening and to ask Robert what he remembers about his appointment(s).  His mental factor is not what it use to be due the the seizures, brain surgery, various parts of his brain having been removed but I will tell you he is the most positive and faithful person you will ever meet considering everything he has been through in his life (now 47 years old).  

Between the three of us we have just about 50-60 pills a day, spread out over five times a day, oxygen, c-pap machine (to keep going), at minimum one to two appointments a week on the low end and this does not include program pick up and drop off for Robert, work, my daily back issues, writing blogs, meals, (2) large dogs, (1) Cat, (1) Red Ear Slider Turtle, yard work, etc, etc, etc.  So you can see why communication is important.  For Robert’s seizures we have a small (4″ x 6″) pen and pad sitting near where Robert is the most during the day so that when (not if) when he has a seizure we can write down the details and that log then goes with Trish and Robert to his next Neurologist appointment.  So, we are not only communicating with each other but it is just as important to communicate with your caree’s doctors, physical therapists, and so on.  They need to know any changes in your caree’s status just as much if not more than you do.  We take this to the extent that in the beginning with my pain I had a pain log (8-1/2′ x 11” spiral binder”) in which I would write down my chronic pain issues as things happened and that would make the trip to the doctors.  With my mom we have what we call, “Mom’s Medical Book of Wonders,” due to the fact that she has had a heart attack and a stroke in the same week, she has had her lungs drained of fluid, the inside of one scrapped (during which they broke a rib) and then with in 6 months of that came back and had double heart valve replacement surgery, while in there have additional minor strokes and many weeks with fluid build up and various medications needing to be adjusted and she still kicks butt and take names and walks her baby, Taffy daily.  This was all communication to the extreme but it had to be done and everyone who saw the various binders was appreciative because everything they needed to know about myself, Robert or mom was and still is in one of those binders or notebooks.


It may not seem like much and it may seem like a bunch but it actually is pretty easy and simple once you get into it.  So next time you think about it (you just did) grab a binder and start writing notes to yourself and your doctor about whatever is bugging you, he will and you will appreciate it in the long run. 


Talk with you later.

/ : ^{ )>

Post navigation

%d bloggers like this: