This isn’t the first time and I’m sure it will not be the last, see my pain without my medical transfusion pump is at a 9-11 out of 10. I am about bed ridden, divorced, doped up on narcotics and more without it. With the pump my pain is on an average day at a 4-6 out of 10, so I am able to get out of bed go through life doing just what gets me by, help take care of
Wong-Baker Face Scale II
Robert for the time I have him and a few things around the house and not much more without being in extreme pain. On top of the medicine pump which is putting Fentynal directly into my spine 24/7/365, I am also taking a few oral pain medicines along with several others meds for depression, excessive sweating (caused by the pain meds), the edema (fluid retention) and constipation. A pain level of 5 even a 6 I can tolerate up to a point, however when the pain gets the point that it, “takes your breath away” and its takes everything you have to gasp to get even a single breath or if your standing it puts you down, that’s when it’s time for another pain med, ice pack, etc. and so forth and so on.
This type of pain, lets call it, Perfect 10 or “P10” only because the scale doesn’t go any higher and I feel it should. There are pain levels above a 10, I know, I’ve “Been There, Felt That and It’s No Fun,” if you ask anyone with chronic pain I guarantee 80% or more will agree with that statement. My pain usually spikes to a P10 about 4-6 times a month and it starts in my low right back and then spreads upward into my right shoulder-blade and some of the time down into my right leg. It does not come on with a warning, no notice, just pain, quick and simple and it can last anywhere from a few minutes to as long as several hours with the after effects, including tightening of the muscle, radiating pain decreasing over time, headache and vision issues. I can’t stop when one hits and explain why I’m slumped over or why I’m not answering you, I spending all my energy trying to concentrate on the pain and keep it from taking over. If you think it something you did, didn’t do or something you said it’s not you, it nothing anyone in the house did, except me. Usually these spikes in pain hit when I fall back into my Macho Man mode,
that’s when I need to do something to make me feel manly. I can’t do the things I use to like mowing the yard, moving heavy objects, stand in one spot without rocking or stretching in one direction or another. But when it comes time to move from a two-story to a single story house and there are boxes to be packed, paint touch up, filled boxes moved, others taken to the storage facility, cleaning that needs done, yard work to get completed, this list can go on and on and it has, for just about three months we have worked on getting ready for open houses to sell our home and going to open houses to see potential homes. Just last night we had our first home showing where we had to leave the house with the animals so the realtor could show his client the house. Well, myself, Trish, OZ, Taz and Taffy about 160 lbs of dogs hop into my Ford Escape and drive around for an about 90 minutes until their done, we looked at home up for sale (drive by’s) and then grabbed some dinner and ate in the Kaiser parking lot. With the dogs in the car we were unable to eat in the eatery. Just being in a car no matter driving or sitting it hurts but it has to be done. Just like items needed to be backed, boxes moved, items loaded by the curb for garbage or the local VFW collecting donations for wounded veterans, the point I’m making here is that these things had to get done. Yes, we could have paid for someone to do it or just went ahead and did it, accept the 2-3 days of extra pain and in the long run save a considerable amount of money, which we just put toward that dang dryer (see my blog, “When does it stop? 6/7/2014).
I would like to thank you for caring, for me. I do at times, and most of us do, need that little voice in our heads, that voice of reason that is there to make sure we remember why we are where we are and why we can’t do what we’re about to do. To all the mothers, fathers, sisters, brothers and caregivers, Thank You all for keeping those of us who are “Pain Proficient” on track and our feet on the ground.
Dedicated To:
To All Those Who Care, Thank You.
Richard (@Kreisler)
PickYourPain@att.net
pppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppppp[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[[.
Don’t ask me to go lay down or for that matter, move. I can’t.
iCareTalk.net 